Local BMX star bonds with boy fighting cancer - www.ktnv.com

Local BMX star bonds with boy fighting cancer - www.ktnv.com

San Francisco Here we come!

    Nick's cancerous tumors from his abdomen and upper body were recently removed during surgery. The issue that I am still having is that he has remaining tumors left in his legs and thigh area. I spoke to Candice regarding his treatment and we wanted second opinions and other ideas on how to effectively knock out cancer. I just did not feel the chemotherapy was doing as good as job as they had hoped. We have decided to try a radiation therapy in San Francisco the idea is to get in there and attack the rest of the tumors. Wish us luck as we go on another roller coaster ride. A ride of our lifetime as we try and save this young man's life. I have been so caught up with the work and all of the regular stresses in life and have not been able to effectively research these treatments to my fullest. Candice is overwhelmed although she seems to be getting a lot of support from her job and her co-workers it's still proven to be
very stressful at times for her as well.

      As time goes on and more accessing his port I feel like he's been chosen to be some sort of  damn experiment. This medical mystery called cancer has affected our day to day lives tremendously. I could not even begin to explain the BS we go through daily.I am sure there is a cure out there. I just know that there is one. I just pray we fall into the hands of a great society/team of medical staff that will see greatness in our son and our lives. I hope they will take mercy on souls and help heal our pain. I cannot take this anymore. I am so tired of all the hurt and pain cancer causes.  You know and I know that everyone speasks about kids cannot die before the parents. Truthfully, I have always been a strong believer in that statement. This is all a bad dream I just want to wake up and be stable in my job with our family in happy places in life learning all day everyday. Why can't we just assume a normal position in life and stop taking blow after blow?! Please God give us a way out of this storm we are headed into.

Do you see a sick child? because the only time I see our son actually sick is when he throwing up from all the toxic poison from chemotherapy.

Nick's tumor operation

    Nicholas has been so very blessed to be surrounded with such patience and professionalism at his new Hospital. We are very grateful to know the staff at the new facilities. We have been in such a wreck since my last blog and believe me when I say we have been through it all, we have been through it all at least twice.

   Nicholas has recently had his tumors removed from his abdomen and he's recovering at this time. He's very itchy and scratchy from the medicines and is having a hard time dealing with all his tubing. I am pleased to know that when I got to the hospital he had so much energy to look me in the eyes to say I love you. I was also able to shoot him some words of wisdom such as do what they tell you to do and listen to your nurses always. He was very responsive to this. He nearly lost a liter of blood during the surgery so we are happy and blessed to have all the blood donors that are out there.

   Candice and I have raised a respectable, loving and fine young man and we are looking forward to seeing him raise his own children and loving up his own family. Nick is the type of young man that is destined to succeed and bless people with his wisdom and courage. He laughed and smiled his whole way into the surgery room the other day. He had no fear and for the first time in my life I knew Candice and I had raised him to think positively and to not have that deep fear inside his body.

There are so many things I wish to say but cannot find the words. Most important of them all, our son is on his way to recovery and has one more round of Chemotherapy on our list of things to do. It will be coming to a slow crawl soon and hopefully he will be back in school shortly. I know that is what he misses most of all. This is what makes a boy feel like a boy and thrive. God bless all of our family supporters! We have been touched by many different kinds of people and some were to be expected and some were just a very nice surprise in our process. Thank you all. :)

Save the drama

Life has been so fast going lately. We have been in and of hospitals for the last week or so. The first couple of times Nick was put back in there after Chemo he bounced back within a day now its taking days and days. Lord please protect our son during this journey. I know that he is very scared about death and I just want him to be comfortable in his skin again as a young man. Give our family the strength to keep this family together and happy. Lord give me all tools we need to drive this vehicle.

Thinker

We are amazed to know that our son Nicholas is one of a kind strong, smart and healthy other than the cancer that resides in his bones for the time being . I cannot wait until the day takes over all the bad cells in his body and he can walk cancer free. I know with the love and tender care of God our lives will meet at a much grater path in the future where we'll all chain up and get ready for another ice road to travel. I love my son so much and to see him feel this ways kills me all the time. Overall, I know the outcome could suck but I never want to believe it. He's deserves better than that. God bless out family and loved ones.

Chemotheraphy Kicked my &%@# this week!

For the most part Nicholas is a very honest, open and loving child. He typically never repeats a curse word or speaks without putting thought into what he is going to say. He is a very big free spirit and this week we got to witness what happens when you upset him and piss him off. At Sunrise when they had Nick all rolled out on Morphine and Haldol for people with serious mental issues. I am not sure if they even knew what they were doing there as far as treatment. You see Nick was accidentally scratching off his dressing in the middle of the night while trying to sleep. The nurse in the day time tried to say that he was trying to de install his port for his IV so she would  not get into trouble for strapping his butt to the bed.

After it was all said and done Nicholas was constrained to bed for over 24 hrs. for cussing and kicking a little. Nurses should be trained to take such abuse. It's a shame how as soon as they say a kid act up or cuss they think he is a disobedient son of a bitch. Well I have got one thing for crazy ass people that want to keep my son high on drugs like haldol. That is for seriously crazy people. We will never step foot into that hospital again nor will I ever speak to his first Oncologist about anything ever again having to pertain to my son. We will not put his adorable, filthy mouth little butt in a hospital where the people disrespect us and what we are going through. My son will never step foot into that hospital again.

The best thing that has happened to us this week is that Nicholas got to come home yesterday. Candice with the help of a couple great people took his room and made it more warm and inviting. We picked up a little 23 inch 1080P tube for his room and it has made a difference. He is in his room where he belongs and with 1 scoop of strawberry ice cream down the hatch and some bottled water. Nicholas willingly went to sleep at a decent time to prepare for his day of Halloween. Now mind you his favorite day of the year is tomorrow and I am just so grateful he gets to be a normal little child and run free with friends.

California Dreaming

Ever since Nicholas has been home from the LA children’s hospital he’s been admitted to the hospital. We are doing what we can to make it easy for him but it’s taking its toll on all of us. The other night he was so sick of just being there and bored that he ripped his IV tubing out of his chest and saw some blood come out. He was scared and just so tired of being in that room with his mother. Thank god for the other children in there though because it has given him a chance to relate. Last night the two had a play time they chose to play the Wii and DS together. Nicholas came back into his room where I was sitting stated “dad isn’t time for you to go home?” I was a little upset he would be so anxious to get rid of me and may have taken it hard. At times its just so hard to know what he may be going through. It’s a challenge everyday to stay calm and patient. Everyone has their own heart strings attached emotionally and mentally. I miss my family so much night after night they rest in the hospital and it is so uncomfortable and foreign to us still to this day. I pray that today his blood reading is healthier so he can come home today. We have a bike run in honor of Nicholas to attend tomorrow and I am not so sure if he will even make it. Monday I will be hopping on the plane to meet up with them at the airport in California, from there we will be heading to the Ronald McDonald house while his bone marrow extraction will be done. God bless this young and vibrant child with all your heart and love.