Ever since Nicholas has been home from the LA children’s hospital he’s been admitted to the hospital. We are doing what we can to make it easy for him but it’s taking its toll on all of us. The other night he was so sick of just being there and bored that he ripped his IV tubing out of his chest and saw some blood come out. He was scared and just so tired of being in that room with his mother. Thank god for the other children in there though because it has given him a chance to relate. Last night the two had a play time they chose to play the Wii and DS together. Nicholas came back into his room where I was sitting stated “dad isn’t time for you to go home?” I was a little upset he would be so anxious to get rid of me and may have taken it hard. At times its just so hard to know what he may be going through. It’s a challenge everyday to stay calm and patient. Everyone has their own heart strings attached emotionally and mentally. I miss my family so much night after night they rest in the hospital and it is so uncomfortable and foreign to us still to this day. I pray that today his blood reading is healthier so he can come home today. We have a bike run in honor of Nicholas to attend tomorrow and I am not so sure if he will even make it. Monday I will be hopping on the plane to meet up with them at the airport in California
Operation Save Nicholas is my way of dealing with this disease. It was created to raise awareness and provide some peace of mind when dealing with his newly diagnosed disease Nueroblastoma.
I hope all went well with your son. I can only imagine the strain this is putting on all of you. Just hold on to one another to gain strength.
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