Chemotheraphy Kicked my &%@# this week!

For the most part Nicholas is a very honest, open and loving child. He typically never repeats a curse word or speaks without putting thought into what he is going to say. He is a very big free spirit and this week we got to witness what happens when you upset him and piss him off. At Sunrise when they had Nick all rolled out on Morphine and Haldol for people with serious mental issues. I am not sure if they even knew what they were doing there as far as treatment. You see Nick was accidentally scratching off his dressing in the middle of the night while trying to sleep. The nurse in the day time tried to say that he was trying to de install his port for his IV so she would  not get into trouble for strapping his butt to the bed.

After it was all said and done Nicholas was constrained to bed for over 24 hrs. for cussing and kicking a little. Nurses should be trained to take such abuse. It's a shame how as soon as they say a kid act up or cuss they think he is a disobedient son of a bitch. Well I have got one thing for crazy ass people that want to keep my son high on drugs like haldol. That is for seriously crazy people. We will never step foot into that hospital again nor will I ever speak to his first Oncologist about anything ever again having to pertain to my son. We will not put his adorable, filthy mouth little butt in a hospital where the people disrespect us and what we are going through. My son will never step foot into that hospital again.

The best thing that has happened to us this week is that Nicholas got to come home yesterday. Candice with the help of a couple great people took his room and made it more warm and inviting. We picked up a little 23 inch 1080P tube for his room and it has made a difference. He is in his room where he belongs and with 1 scoop of strawberry ice cream down the hatch and some bottled water. Nicholas willingly went to sleep at a decent time to prepare for his day of Halloween. Now mind you his favorite day of the year is tomorrow and I am just so grateful he gets to be a normal little child and run free with friends.

California Dreaming

Ever since Nicholas has been home from the LA children’s hospital he’s been admitted to the hospital. We are doing what we can to make it easy for him but it’s taking its toll on all of us. The other night he was so sick of just being there and bored that he ripped his IV tubing out of his chest and saw some blood come out. He was scared and just so tired of being in that room with his mother. Thank god for the other children in there though because it has given him a chance to relate. Last night the two had a play time they chose to play the Wii and DS together. Nicholas came back into his room where I was sitting stated “dad isn’t time for you to go home?” I was a little upset he would be so anxious to get rid of me and may have taken it hard. At times its just so hard to know what he may be going through. It’s a challenge everyday to stay calm and patient. Everyone has their own heart strings attached emotionally and mentally. I miss my family so much night after night they rest in the hospital and it is so uncomfortable and foreign to us still to this day. I pray that today his blood reading is healthier so he can come home today. We have a bike run in honor of Nicholas to attend tomorrow and I am not so sure if he will even make it. Monday I will be hopping on the plane to meet up with them at the airport in California, from there we will be heading to the Ronald McDonald house while his bone marrow extraction will be done. God bless this young and vibrant child with all your heart and love.