For the most part Nicholas is a very honest, open and loving child. He typically never repeats a curse word or speaks without putting thought into what he is going to say. He is a very big free spirit and this week we got to witness what happens when you upset him and piss him off. At Sunrise when they had Nick all rolled out on Morphine and Haldol for people with serious mental issues. I am not sure if they even knew what they were doing there as far as treatment. You see Nick was accidentally scratching off his dressing in the middle of the night while trying to sleep. The nurse in the day time tried to say that he was trying to de install his port for his IV so she would not get into trouble for strapping his butt to the bed.
After it was all said and done Nicholas was constrained to bed for over 24 hrs. for cussing and kicking a little. Nurses should be trained to take such abuse. It's a shame how as soon as they say a kid act up or cuss they think he is a disobedient son of a bitch. Well I have got one thing for crazy ass people that want to keep my son high on drugs like haldol. That is for seriously crazy people. We will never step foot into that hospital again nor will I ever speak to his first Oncologist about anything ever again having to pertain to my son. We will not put his adorable, filthy mouth little butt in a hospital where the people disrespect us and what we are going through. My son will never step foot into that hospital again.
The best thing that has happened to us this week is that Nicholas got to come home yesterday. Candice with the help of a couple great people took his room and made it more warm and inviting. We picked up a little 23 inch 1080P tube for his room and it has made a difference. He is in his room where he belongs and with 1 scoop of strawberry ice cream down the hatch and some bottled water. Nicholas willingly went to sleep at a decent time to prepare for his day of Halloween. Now mind you his favorite day of the year is tomorrow and I am just so grateful he gets to be a normal little child and run free with friends.
I just found this site today on facebook and I want you to know that I am praying for Nicholas and his entire family and friends. I hate to hear of children suffering with diseases and other issues. I spent 6 months of 2011 at a Children's Hospital witnessing the strength and determination of my 5 year old nephew fighting for his life after major complications following an open-heart surgery to repair a birth defect. Nate, my nephew, pulled out multiple feeding tubes, IV's, and made a few attempts at pulling out central lines and shunts draining fluid from his brain. But NEVER did they restrain him to the bed. I am a CNA (Certified Nurses Assistant) and have NEVER seen anyone be restrained to a bed. This enrages me. Not only is Nicholas scared and traumatized from having his world flipped upside down with a cancer diagnosis and going in and out of the hospital, those nurses added to it in a manner that was unnecessary. I completely understand you never taking him back there. I also wonder if you reported this. I am having a hard time understanding how that was legal in the first place. My medical understanding at the nursing home I work in is that you can only use restraints if they are endangering their lives or the lives of others. They have a "right" to get out of bed and fall, pull out catheters, etc... If he was trying to pull a port out they make a type of glove that makes it very difficult to grip something. In my nephews case they applied a soft, padded splint to his elbow so he couldn't bend it. I pray that I have misunderstood what I read and he was not tied to the bed. If so, this hospital is guilty of neglect and abuse and those nurses and doctors should be held accountable for their actions. This should not be happening to any child and I am terribly sorry Nicholas had to go through that along with everything else he is going through. I will continue to pray for Nicholas' complete healing of cancer and for you guys and I will also pray that no other unnecessary trauma comes to him.
ReplyDeleteIf you would like to discuss this further please contact me on facebook at cacojacey@yahoo.com